Cerebral palsy and adults and research

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The provincial Cerebral Palsy Associations and Kids Brain Health Network researchers are partnering to enhance the health and well-being of children, youth and adults with cerebral palsy and their families. This CP Canada Network aims to inform and empower families by providing accessible, credible information on new research discoveries, educational opportunities, provincial services and programs and personal success stories. Information that is relevant specifically to individuals with cerebral palsy will be continuously updated, so as to optimize awareness and understanding of the condition and facilitate access to the best services and supports.

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What is Cerebral Palsy? What are the early signs? What causes cerebral palsy?

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With medical advances, more individuals with cerebral palsy CP syndromes who reside in developed countries are surviving to adolescence and adulthood. However, there continues to be a paucity of research examining long-term health, functional activities, and participatory outcomes over their life-course. This article reviews the current literature assessing adult outcomes for individuals with CP within the framework of the International Classification of Functioning ICFDisability, and Health model of enablement.

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We are working on updating our site; listed below are studies that have used the CPRR for recruitment. The purpose of this study is to understand how persons with cerebral palsy use their vision to help with balance and to prevent falling. A virtual reality set-up is used to assess balance. The researchers hope to be able to provide an effective intervention to improve balance and walking ability in persons with cerebral palsy.

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Cerebral Palsy is known as a childhood condition, effecting movement, and other daily activities. Steady birth rates of children with cerebral palsy and near normal life expectancy means that there are now more adults than children with cerebral palsy. Although cerebral palsy is often perceived as an unchanging condition, adults with cerebral palsy commonly experience new problems in adulthood, such as pain and falls.

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Kimberley Smith does not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and has disclosed no relevant affiliations beyond their academic appointment. Republish our articles for free, online or in print, under Creative Commons licence. Cerebral palsy affects muscle control and movement and is caused by injury to the brain around the time of birth.

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Future research should focus on studies across the lifespan of cerebral palsy patients, with emphasis on participation and quality of life measures, according to a research agenda for cerebral palsy developed by patients, caregivers, and clinicians. Also, according to an online survey, parents and caregivers of children with cerebral palsy feel that the available medical information is inadequate to guide their medical decisions regarding the child. However, few efforts have been made to produce such a collaborative research agenda for cerebral palsy.

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Download a text transcript of the Everyday Challenges video. The parts of the body affected by cerebral palsy, the level of severity and combination of symptoms can differ for each person. For example, one person may have a weakness in one hand and find tasks like writing or tying shoelaces challenging.

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We explored the quality of life of adults with cerebral palsy without an intellectual disability and the predictors of quality of life. Because cerebral palsy is a disease that manifests in childhood, much of the research into quality of life for those dealing with it focuses on children; there are few studies that evaluate the quality of life of adults with cerebral palsy. Therefore, it is important to consider their perceptions in order to improve their general wellbeing and self-determination.

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For those with cerebral palsy and their families, new advances in medicine and technology often provide hope and some much-needed support. The following are three major advances in cerebral palsy research that show significant promise. Robotic technology goes far beyond creating self-driving cars or robotic assistants. Significant advances in robotic technology are taking place within the medical community, and some are making headlines for their ability to help children and adults with cerebral palsy.

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